Our kitchen remodel – week #4


Our kitchen remodel week #4 was pretty exciting … Baby Ben was born … Rick had his 9th clinical trial infusion … and there was lots of paint! This week priming and sanding of cabinets, texturing of walls and then final paint on cabinets happened. Lots of dust … and that “new paint” smell. It was a long week with painters in the house … but the results are so worth it! The cabinet color is “stucco.” The kitchen island color is called “caviar.” And the color of the walls, which we don’t have much of, is called “waterfall.” It totally matches the three art tiles which will go above the range. I know … it is a little different. Trust me. But then again … this is what happens after waiting 35 years to remodel a kitchen.

Rick is still creating delicious breakfasts on the grill on the weekends. Chances are a kitchen sink is in our future. A gas range can’t be far behind.

A cancer journey with immunotherapy – Infusion #8 and magical infusion #9


Since maintenance immunotherapy infusions are pretty routine stuff, I’ll be writing about them two at a time. Both infusion number 8 and 9, two weeks apart, started at 6:30 am with bloodletting. Only now since we are so far into the clinical trial, they only take about five vials instead of 15. Then we hang out for a couple of hours and wait for test results before meeting with clinical research peeps and oncologist. After bloodwork is blessed, we head up to 8th floor to wait for infusion. Usually back at home by 2 or 2:30. We can do this!

Infusion #9 was a pretty darn special forty-eight hours. Our daughter, Katie, went into labor with her second babe the day before the infusion. When I got the news, it took most of the morning to get my ducks in a neat little row. I quickly packed a bag, got a quick kennel reservation for Lulu, and a spot for Mimi at her respite house before heading into Houston for a few days. There was a high alert placed for our son-in-law’s parents, Nana Jana and Pee-Paw to assist with little Jacob. They drove in from the Dallas area. Yes … it would take four grandparents to take care of one little toddler! Jacob is a busy boy. Rick and I picked him up from daycare and then out to dinner. As Houston is not our usual arena, we relied on Yelp for dinner spots and almost wound up taking little Jacob to a sports bar. A quick call to our daughter in labor and we settled into a more appropriate dinner spot.

The following morning, also infusion #9 day, grandson Baby Ben arrived … 8 pounds, 7 ounces! Rick started his day at MD Anderson. After dropping off Jacob at daycare, I hurried to get my paws on our newly born Baby Ben. Such a handsome little guy! I am in serious love! Later in the day, I arrived at MDA to supervise Rick’s infusion. Afterward, we headed around the corner to see Baby Ben. I have an adorable photo of Pop-Pop wearing his hospital bracelet from MDA holding Baby Ben all tightly wrapped up with his hospital bracelet. All in all, an interesting infusion #9 we will never forget! Prayers and MDA made this magical moment possible!

Our kitchen remodel – week #2

Gotta tell you, as kitchen remodels go, work during the second week has been kinda boring. But I realize … very necessary. Basically, we had a plumber dude come out to set the gas line for the old switcheroo from electric to gas range. The outside walls were re-insulated. Oh, and the walls and ceiling were buttoned up with sheetrock and floated. This was especially nice since I’ve been having nightmares of bugs dropping out of the ceiling holes at night.

We are moderately adjusting to not having a kitchen sink and dishwasher. My favorite part of this whole remodel adventure is Rick cooking Saturday morning breakfast on the grill. Week #2 saw perfection in cooking hash browns!

Our dog, Lulu, seems to be hanging in there with all the noise and people she deems as extra special scary.

Our kitchen remodel – week #1


So my thirty-five year old kitchen is getting a major makeover. It was a sad thing … my kitchen … but with lots of wonderful memories made over the years. So many family dinners. My kids learned to bake cookies sitting on that kitchen counter and to this day are awesome cookers and bakers. And too many holiday dinners to count on both hands and feet. Well, it’s time to make some new memories!

It took just two dusty days to demolish the crusty stuff down to the studs. Thank you Finishing Touches! I understand getting it put back together in working order will take approximately four to five weeks. That would mean Thanksgiving in a new kitchen! During the first week, we have already seen part of the kitchen put back together. We also had the electrical roughed-in and a layout planning meeting with the cabinet maker.

Some of the things we are changing: gas cooktop/electric oven … painted cabinets … an island … tile backsplash with some art tiles (call me crazy) … an interesting sink choice (stepped out of our “boring” zone on this one) … and granite! Rick and I collaborated on most all of the choices, but I also worked with an awesome designer on colors, etc. so our kitchen didn’t look like Walt Disney threw up all over it in the end.

OK … so I know the really fun stuff hasn’t happened yet! Give it a couple of weeks!

Things I have learned … how to use paper and plastic eating utensils to the max! Oh how much I miss my kitchen sink. Living with the refrigerator and microwave in the living room is really quite handy … but weird!

A cancer journey with immunotherapy – infusion #7 sweet spot and a return trip!


Last week we had a major milestone with “the schedule” at MD Anderson. We discovered our sweet spot after lots of 12-hour “infusion” days. Basic schedule now is bloodletting at 6:30 in the am, meet with clinical trial nurse and oncologist at 8:30, and then a lovely infusion before and during lunch! No more grumpy bug faces on our part. I think we got this! Maintenance infusion #7 was a like a gentle fall breeze and we got home about 2 pm.

The most interesting part of the day was meeting with one of Dr. Campbell’s fellows! I learned our awesome oncologist, Dr. Campbell, gets a new one each month. I wish I wrote down his name. The young man was chatty … I love that … and has a PHD in immunology. He told us Rick had kidney cancer long before the severe symptoms appeared that lead us on the quest to figure out what was wrong. He called those scary symptoms the “tipping point.” I learned once you get to that point it is imperative to quickly get a correct diagnosis and start treatment. We also learned that Rick’s clinical trial for clear cell kidney cancer now has all their sixty patients. Rick was number 36. No more slots are available. So far Rick is still the rock star performing the best in this particular immunotherapy trial. Sixteen and one-half months to go!

The day after the infusion we took a trip … back to Washington, DC … to hang for a few days with our son and lovely daughter-in-law. We were there last in March to fulfill a promise and witness Kate’s confirmation into the Catholic Church. That trip was also after Rick’s very first infusion after being approved for the clinical trial. We went back and forth on the teeter totter about whether we should go. Rick was in lots of pain and nauseous most of the time. It was Rick’s decision to go for it … and we made it happen. I remember pushing him through the airports in a wheelchair. Back then he didn’t walk much in D.C. He was mostly there in spirit.

What a difference seven months make. This time we stayed up late, walked our feet off, got up and personal with lots of Washington D.C.’s monuments, went on an awesome history tour (History Nerds) of the Gettysburg battlefield, played trivia with Ricky’s cadets in a bar, toured the Holocaust Memorial Museum, and so much more. I think I got my hubby and travel buddy back!

My favorite day was the Gettysburg battlefield tour in Pennsylvania. Ricky and the lovely Kate had purchased the tour for hubby’s birthday present in September. I had no idea Gettysburg was only a ninety minutes drive from Washington, D.C. Al Condit was our amazing tour guide on the History Nerds tour bus which lasted just over two hours. The comfortable bus held about a dozen people. Al knows his Gettysburg history and provided non-stop fascinating commentary and occasional videos on the famous three-day battle. We got out of the bus a couple of times … once on the Confederate side and once on the Union side at Little Round Top. While there are many ways to experience Gettysburg … I totally recommend the History Nerd tour. Just saying!

A cancer journey with immunotherapy – maintenance infusion #6 … turtles … scan results

Infusion drugs!
So the hubster had his CT and MRI scans this week, along with his every other week maintenance infusion. This week was maintenance infusion #6 of the immunotherapy drug Nivolumab. The scans are an added stress and just two more things we gotta do … but only every three months. They give us some great information on how Rick is responding to Nivolumab as we very slowly inch toward the finish line of treatment about 17 months from now.

When we both get to be grumpy bugs about “12-hour Thursdays,” I like to tell Rick his cancer journey reminds me of one of Aesop’s Fables, The Tortoise and the Hare.

“Dear … you are that slow and steady tortoise in a race for your life. And we all know who won in that story, don’t we?”

It was during our meeting with the lovely Simi, Dr. Campbell’s awesome PA, that we got the results of the MRI from the evening before. Rick wouldn’t have his CT scan until later in the day. Simi started with the liver tumor which went from 2.1 cm to 1.8 cm. Nice! Just don’t ask me how big a centimeter is! The tumors in both lungs were already reported to have disappeared in a previous scan, so no news there. The tumor on his chest was reported by the radiologist to have “decreased” but no specific measurement was given. I’ll take that and run with it!

I was hoping there would be some good news on the four cancer affected areas of bone. In all these months nothing much has been said about the bone areas. Simi indicated that in three bone areas the cancer was “killed.” Simi then looked us straight in the eyes, starting with Rick, and then grabbed Rick’s arm. With a smile that touched both her ears, Simi repeated that one important word “killed” again. News like that sinks in slowly … and in waves. Oh, and one other bone area, on the 9th rib, had decreased. I’ll reserve my happy dance for later at the house.

Simi also told us Dr. Campbell shares his patient cases with his fellows.

“He doesn’t use anyone’s name, but when Dr. Campbell is describing a patient, I always know when he is talking about you! Rick … you are becoming a celebrity with the fellows. They all want to meet you,” Simi told us.

Dr. Campbell dropped in grinning a few minutes later. He told us Rick’s dramatic results in this clinical trial has shown the “best results he has ever had in a patient.”

So yesterday … was a very good day.

And after all these months I am still learning. This week I learned that only 3% of cancer patients are participating in clinical trials. We need to do better. I learned that being a celebrity sometimes has nothing to do with receiving an award like an Oscar or an Emmy. Sometimes it is just awesome test results and excited fellows! I learned that someone new tells me every day they are praying for us. It is very humbling. I also learned I get lost every time we have an appointment in the main building at MDA. I also learned the gift shops at MDA sell Chex Mix snacks, Rick’s favorite snack. Oh … and I really like turtles!

A cancer journey – six months of treatment down … 18 more to go!

Infusion time!
It has been years since I sat down and watched an episode of The Simpson’s. Looking back, I can certainly relate to the kids on the show. We have our own Lisa, Bart and Maggie characters in our family. So does anyone remember The Simpson’s “Itchy and Scratchy Show?” They are a mouse and cat cartoon, within the Simpson’s show. The cat and mouse are actually really mean to each other. I recall always letting out a disapproving “yuck” and covering little eyeballs in the room whenever the duo came on the screen.

Well, we have our own “Itchy and Scratchy Show” at the Frantz house. Not to worry … no violence involved. It seems one of Rick’s side effects from the Immunotherapy is lots of itching. Not only that but now he has little red spots popping up. Reminds me of perpetual chicken pox. So if that is all he has to deal with during cancer treatment, we are counting our blessings big-time.

It is why Rick had a dermatology appointment last week at MD Anderson to help with the issue before things get out of hand and the dude is covered in little red spots. They even did a biopsy to make sure it really wasn’t a big deal. Two prescriptions later, one a gigantic vat of itch cream I swear I could dip him in, and we were out of there. It was the shortest day on record at MDA for us.

This week Rick finished up maintenance infusion number five! Dr. Campbell confirmed that with six months of treatment under Rick’s belt, side effects from the immunotherapy would almost certainly be limited to the itching and was actually pretty common. Rick’s immune system is like another cartoon from my own childhood … Mighty Mouse … to the rescue!

When I mentioned to Dr. Campbell, our awesome oncologist, that maybe he could take out that one stitch from the biopsy last week since we were there, he said, “I don’t have a kit.”

“While I don’t have one either,” I said back.

The dermatologist did indicate to me it was really easy. Sure … that is what they all say … was my first thought. Dr. Campbell then drew a large picture of how to take the stitch out. Like the 84 injections after kidney removal surgery, it looks like I’m committed.

The birthday that almost wasn’t was also celebrated this week. I’m still pinching him to make sure he is real. Rick was the birthday boy with cake baked by adorable pregnant daughter, Katie, with lots of help from grandson Jacob. The little guy cracks a mean egg.

No MDA visits for two weeks. On the radar … CT and MRI scans and maintenance infusion #6. We aren’t even close to done yet. Thanks for continuing to keep us in your prayers!

A cancer journey – struggling with the schedule

Infusion time!

Two weeks ago, Rick had his first of many “maintenance” immunotherapy infusions of Nivolumab for the clinical trial he is on for his clear cell kidney cancer. The hope is the drug will re-train his “T” cells to recognize and destroy any remaining cancer cells.

Fast-forward to yesterday and we were hopeful to get the go-ahead for “maintenance” infusion number 2. We gotta do this every two weeks for about 20 more months … not to mention scans every few months. It is going to be a very long haul … but I believe the worst is behind us. I’m still trying to wrap my head around the fact that Rick had a kidney/tumor removed two months ago. Seems a little surreal. Rick has been back at work for the last few weeks and was finally cleared to climb on all that fun metal stuff at the plant.

It is why Rick and I have been huddling with the calendar trying to figure out how to integrate these MDA visits into our lives with work and family. The whole infusion thing reminds me of baking cookies. The infusion recipe has a specific order and involves several ingredients starting with blood work. Actually, Rick and I lovingly call it an old-fashioned bloodletting because they take over a dozen vials of blood. That is done the day before, or at the very least two hours prior to meeting with the clinical trial research peeps. She asks bunches of questions to see how Rick is doing and records the answers on a computer. I don’t think she found a spot to record my answer, “Rick has his sense of humor back!”

Next ingredient … we stir in a meeting with the PA, the lovely Simi, and sometimes Dr. Campbell, the oncologist. If all the blood work looks fine, we head to another floor to bake at 350 degrees or until done. Actually, that is where we go for the actual infusion. Like waiting for bread to rise, that part involves waiting around for a couple of hours for whatever goes on behind the scene and finally the infusion. Why am I telling you all this? Because these infusions days can easily burn a whole workday.

So Rick and I tried an experiment this week with the schedule. Rick drove to MDA from work late in the day on Wednesday for his blood work. On Thursday, Rick and I met with the clinical trial “team” in the early afternoon and was approved for his infusion. We figured it would be way easier to make up a few hours at work then a whole day. Good news … his lipase numbers had dropped again. Rick was now so close to the absolute top of the normal range. Actually, there was a few minutes when it looked like we might be sent home again. Imagine throwing out a perfectly good batch of unbaked cookie batter. It felt like that!

I left MDA at 3:30 pm to head back to meet Mimi and her bus. Rick finally pulled up into the driveway after 7 pm. I could tell by the look on his face this wasn’t going to work and he had a “Plan B” in mind. I have a call into Dr. Campbell’s awesome scheduler, Lauren. Hopefully, she can work some magic for when we head back down to MDA in two weeks for “maintenance” infusion number 3.

A cancer journey – kidney removal surgery


It has been a week since Rick’s left kidney/tumor was removed. Whoever said it “takes a village to raise a child” musta also been talking about someone having major surgery. Throw our special needs daughter into the mix and the village quickly became a small metropolis. Our son, Ricky, and lovely daughter-in-law, Kate, flew in from Washington, DC. Our daughter, Katie, along with son-in-law, Chad, and even grandson, Jake was also there to help. We thought we had all our ducks in a row with our dream team in place! After all, hubby was only going to be in the hospital two to three days tops.

A day before surgery, my friend, Mary, stopped by with fruit and sandwich trays with a card signed by so many people with special needs connections. There was also homemade brownies from Sandy, and macaroni salad from Jan. I gotta get that recipe! How did they know I hadn’t thought about feeding the dream team?

On the morning of the surgery, Katie surprised her dad in the surgery waiting room with a visit from Jake. It was magical watching Jake run toward Rick yelling “Pop-Pop.” Nothing like your favorite two-year-old crawling in your lap to lessen the tension. We didn’t know it at the time, but surgery day would be twelve long hours until Rick finally made it into his hospital room for the night. We were updated so much along the way from meetings in pre-op, to surgery updates every two hours, and finally visiting in recovery. When we met with Dr. Karam, the kidney surgeon, after surgery we learned the kidney/tumor removed was the size of a cantaloupe. I will never forgot how he held his hands up to represent the size of the tumor/kidney. Everything went as planned!

In a vague peanut shell … the details you don’t want to know … the hospital stay lasted five days and nights with lots of walking the halls trying to get his gut to wake up. Seems thirty percent of patients have this challenge after surgery and we just had to wait. Someone spent each day and night at the hospital. It was a regular relay team. I only had plans in place for people staying three nights. I took one night and Ricky stayed two. When things dragged on through the weekend, I called his brother, Gary. Our Katie also spent a night. The nights were especially challenging. At MDA they wake you up at night for something every couple of hours. I got the feeling sleep isn’t a priority at MD Anderson. Getting well is!

I think it was on day two that Katie, Jake and Chad paid a visit to Rick’s hospital room. Jake was bringing Pop-Pop a stuffed purple “kidney” pillow. The plan was for Jake to enter the room and say, “Pop-Pop I think you dropped something,” and then hand him the kidney pillow. I think he only got the words, “Pop-Pop” out but you get the picture!

Sometime during day four, the nurse said I had to watch an instructional video to learn how to give Heparin injections. Yep … I would be giving Rick injections three times a day for 28 days. Lucky me! After the video the nurse had me practice on Rick. Good thing the needle was small … very small. I can do this … but I will be glad when we are finished!

We are now in recovery mode at the house, getting lots of sleep, and better every day. When Ricky and Kate boarded the plane for home, Rick’s awesome big sister, Bonnie, came to stay for a couple of weeks and we are tag teaming nicely!

Things I have learned … my neighbor, Marie, makes the best soup and decorated “happy face sun” sugar cookies! She always me smile! I learned that when someone sends you an email asking how they can help, you write them back. I asked for help bathing Mimi … and then they also brought Mimi and I holy communion and homemade cookies and muffins. I am so blessed. I also learned that sometimes people know exactly what you need without asking. And I learned the reason I never considered becoming a nurse … giving injections!

A cancer journey – the green folder

Lots of wheelchairs to borrow
Next week is surgery week. Rick’s left kidney comes out on Tuesday! It all sounds a little too simple. Right?

We thought we had finished all our appointments during our pre-op day at MD Anderson. Now we could just coast on a lovely, poufy cloud until the big surgery … but wait! It seems in taking all that blood, possibly a gallon by now, someone had forgotten to “type” Rick’s blood. Really? Is that necessary? But Rick’s dog tags from his Air Force days clearly state the dude is an A+. It seems they don’t take anyone’s word on that. The place is careful … very careful … and I actually appreciated MDA for that. So we spent last Friday … the 13th … our anniversary … at MDA for two last appointments.

The first was the lab! Whenever we visit the MDA lab, I hang out in the waiting room. I figure Rick can perform that task himself as there are not going to be any notes I have to take. After about twenty minutes, my macho Rick walked toward me with the funniest grin on his face. The hot pink flexible tape around each arm where the techs took blood were obviously the culprit. I almost fell on the floor laughing. I took his picture with my phone and immediately sent it to our kids.

“Why did they take blood from both arms?” I asked, picking up everything I dropped on the floor.

Maybe I should have gone into the lab area with him!

“They had to take blood out of each arm, with two different technicians, and then they will compare the tests to make sure I match,” Rick explained.

“And so … did you request the hot pink?” I countered.

“I don’t know whose idea that was, but when the first lady was finished, the second one decided I should match. Only they ran out of hot pink and had to scrounge around to find some,” he grinned.

Our next appointment was with patient education in the Mays Building. That was when we were given the dreaded “green folder.” My eyes widened like bowling balls as the nice lady went over everything for about an hour and then put all the paperwork into the folder. Then she slid the green folder over to me. Basically, it was loaded with checklists, Rick’s preparation for surgery, phone numbers, maps and care plan. OK … this wasn’t going to be simple. But I think I already knew that.

First time in ages we finished at MD Anderson before lunch. Next we headed to mid-town for an awesome anniversary lunch at a place called Holley’s Seafood Restaurant and Oyster Bar on Louisiana. Our first time there. It was delicious! Highly recommend sharing the apple pie bread pudding for dessert!

Yesterday I checked MDA’s patient portal for test results. You get three guesses on what Rick’s blood type came out to be.