A cancer journey – CT scan and infusion results

Infusion drugs!
When last we hung out, Rick had just finished his third immunotherapy infusion. So for about two weeks the superman t-cells have been “cooking” on Rick’s insides. I can tell you we haven’t been twiddling all four of our thumbs this whole time. We ordered a car to be converted for transporting Mimi in her wheelchair, completed construction on a pocket door for Mimi’s room (it needed to be widened for years), and celebrated our grandson Jake’s second birthday. We are in serious love with the tyke!

Rick’s CT scan was this past Sunday … yes I said Sunday … at MD Anderson, the hospital that rarely sleeps. Our awesome daughter, Katie, took her dad for me while I hung out with our Mimi. If you have never had a CT scan, I can tell you do not feel compelled to add it to your bucket list. Not a fun way to spend your day. First you drink a large flavored drink in the waiting room. Rick chose “watery orange” this time. Yum! Then an IV is started. The rest is a mystery to me as daughters and wives have to sit and wait in the waiting room. After lots of hours, Rick came out all done and wasn’t glowing.

On Monday, we had an early morning appointment with the kidney surgeon, Dr. Karam. We pretty much knew from the beginning Rick’s left kidney (the cancer “mothership”) would be coming out. Now we would be getting a surgery date and meeting with the surgeon for the first time. Rick still wasn’t feeling well from the CT scan, so in my haste to pack crackers and nausea medication before backing out of the driveway, I neglected to bring any paper for taking notes. I just know it … someone is going to take away my Girl Scout card for not being prepared.

In the end, I wrote everything down on the back of a Kroger grocery receipt. Here is what he told us. We talked in general terms about the CT scan. No numbers or percentages. The phrase “mixed response” was thrown out. Surgery is Tuesday, May 24. Actual surgery takes about three hours, not including all the stuff happening on the front and back end. Hospital stay is two to three days. Recovery … about two weeks but still not running sprints. Interesting factoid about MD Anderson … they give you a surgery time the day before the surgery. The reasoning is surgeries get cancelled and then some surgeries get added so there are always lots of shuffling of the cards. Seems like it could work for the benefit of patients. I’ll let you know how well it works.

Today we had an appointment with Rick’s oncologist, Dr. Campbell. This is the visit I was most interested in as we’d get information on how the infusion drugs have been working. His first CT scan was in mid-February right before he was diagnosed. This was an important visit!

We learned that in just over two months, the tumor in his chest is reduced by forty percent. OK … double digits! The tumors in the lungs are clear. That means they can’t see them. Can I get an “amen?” The tumor in the liver is reduced by twenty-five percent. We were pleased with the number! The tumors in three bone areas “lit up” as unchanged, but it was explained that the CT scan is not a really good indicator with the bone. We will get further on down the road and perhaps at some point do a bone scan and get a better feel on those areas. The kidney tumor has not changed in size but doesn’t look the same. He was not concerned about this since it was coming out. Rick’s mission for the next four weeks is to get in shape for the surgery. Dr. Campbell suggested a personal trainer. He also mentioned yoga. Yeah … like that is going to happen. I don’t expect the Incredible Hulk in just four weeks but then again … I know an awesome personal trainer!

Bottom line … the tumors are responding to the immunotherapy infusion drugs. Clearly, the power of prayer and immunotherapy is working!

A cancer journey – the third infusion

Infusion drugs!

On Monday, Rick gave lots of blood for MDA to work with. It is MD Anderson’s clinical trial standard operating procedure. The following day we were to  see the doctor and have the infusion. I counted 15 vials of blood taken and I didn’t even faint. OK … I got a little weak in the knees maybe. I don’t know how the lab technicians do this all day.

On Tuesday, we met with Dr. Campbell, our kidney oncologist. Rick’s blood work continues to majorly improve. Yeah! Dr. Campbell also noted that if he didn’t know exactly where the lump on his chest was located, he would have missed it. He estimated the size now at approximately one centimeter. Lots of smiling while this sinks in! The CT scan in a couple of weeks will give us lots more information, but for now, the signs are all there that the immunotherapy infusions are working their magic.

Next we headed over to the MDA’s Main Building for the last of Rick’s long infusions of the two drugs. The Main Building reminds me of the wild west … a lot rowdier than the calm atmosphere of the Mays Building. It was new territory for us as we had always headed up to the 8th floor of the Mays Building for infusions. Not a big deal except I had to figure out where to go to get Rick’s IV started. It has been our experience, so far, the nurses who drip the drugs are not as well versed in starting IV’s. Not to worry … MDA has people that are expert IV starters. Just ask me … I will tell you where to find them.

The infusion started late and took four hours this time. Our world record was five hours … not counting waiting to get in the door! Yeah … you can burn a whole day hanging out at MDA but then they give you a warm blanket and the tension melts away. Katie drove her dad home for me again so I could get back home for Mimi’s bus. What would I do without her?

As I made my way to collect my car from valet parking I had my own adventure. Not to worry … no blood was spilled. The valet dudes were a little pokey in getting me my car keys. Instead a Valet Supervisor came toward me with a clipboard. Not a good sign. Seems one of the valet drivers backed my car, which has backup camera, into a concrete pillar and crunched one of the tail lights and messed up the paint. Really? In the grand scheme of things … not as big a deal as Stage IV Kidney Cancer … and they are paying to fix it.

A cancer journey … promises and second infusion


Last year when Kate, our lovely daughter-in-law, was going through RCIA studying to become a Catholic, my husband made her a promise. He would be there with her at the Easter Vigil in Washington, DC when she officially became Catholic. A few weeks later we paid for plane tickets. I even did something I’ve NEVER done before … paid for four days of hotel on hotels.com. Oh yeah … we were going to be there … or be square!

Shortly after, Rick got the kidney cancer diagnosis and it didn’t look like that promise was going to be kept. I knew Kate would understand but Rick and I were both really upset. We had quietly prayed for over four years that Kate’s faith journey would lead her in the direction of the Catholic Church and now it was going to really happen.

Dr. Campbell told us it was possible Rick would feel better after his first immunotherapy infusion. Maybe even well enough for the trip. Not sure I believed him. But we clung to the possibility. Except the first infusion was delayed five times and time was getting short. Every time I spoke with our son, Ricky, on the phone I would tell him to be prepared that we might not come. Personally, I really didn’t think it was even possible considering how bad Rick felt. We were to leave on Thursday, March 24. That Monday before, we were still going back and forth on whether we should go. On Tuesday, my hubby said, “We are going.” He was a little better … but wouldn’t be running sprints in the airport.

The trip was way more fun for me than for my husband. It was the first time in months that I had sat in a restaurant and held an adult beverage in one hand … especially one so darn cute with lots of fruity stuff poking out the top. After the first three sips, I was calling my Sangria … Sagria. It was a magical night!

We had to majorly slow things down for Rick. He took lots of naps during the day. I also rolled him through the airport in a wheelchair. Rick barely managed to get through the three hours passion service on Good Friday at the Basilica of the National Shrine of the Immaculate Conception in Washington, DC. I don’t know how he did it. Well, it wouldn’t have happened without our son dropping us at the curb. On Saturday, Rick did have to miss the four-hour Easter Vigil. It wasn’t going to be over until 11:30 p.m. and I insisted on him hanging out at the hotel. Kate’s awesome mom recorded the big event on video for Rick to view later.

The day after we got back from our trip, we meet with Dr. Campbell right before Rick’s second infusion. The lump on Rick’s chest had turned from hard to soft and flattened out. Imagine going from a “D” cup to a “B” in two weeks. He is getting some of his stamina back and his blood levels look great. His doctor told us Rick’s improvement was “dramatic.” I love that word “dramatic.”

The second infusion went smoother than the first. Not much in the way of side effects. No MDA appointments for two weeks. We’ve got some home projects that need attention and I finally dropped off our income taxes.

This week I learned … it is lovely when you run into people you know at MDA like the amazing Ev and Joan Evans … oh and my daughter, Katie, is extra awesome. She drove her dad home from MDA when the infusion lasted longer than expected and I had to get back home for Mimi’s drop off by the day center bus. She is my hero! I also learned how much pleasure I get out of just getting the sheets washed when I realize I don’t have to be at MDA the rest of the week! I learned the simple pleasures of walking among the cherry blossoms with people that I love like Aleta, Sarah and Kate. I learned how much of an awesome adult my son, Ricky, has become. He took such great care of his dad and me on our visit. I got a little emotional when he dropped us at the airport. I also learned the priceless value of a kept promise.

Nativity quilt … the rest of the story!

The quilt sold at live auction!
Our Nativity quilt was one of the items featured in the live auction at St. Martha’s Fall Festival on Saturday. It was a wonderful event for the whole family filled with fun, food, games for the kids, craft booths and fellowship! And yep … this is my final post about the Nativity quilt!

The live auction started at 7 pm. For a few ladies who stood off to one side closest to our quilt, you could cut the tension with a heavy-duty rotary cutter! After a full day of working our craft booth, several of Martha’s Quilters were in attendance for the live auction. Finally, our quilt came up for bidding. Our demeanor turned anxious as our quilt was finally brought forward. The minimum bid was $1,000. I held my breath. Would anyone in the crowd even bid on such an expensive item? Five long seconds passed. Finally, a lady raised her hand in the front row. Then a lady on the second row raised her hand. They battled back and forth and when the dust settled … our Nativity quilt … the one seven ladies worked on for three months … 843 fabric pieces and over 250 collective hours … the same quilt I had dreams about … what if we didn’t get it finished in time kinda dreams … the auctioneer announced “sold” … for $2,200! A very happy ending to a long journey.

Nativity paper-pieced quilt – part one


Our Prayer Quilt Ministry is getting ready again for the St. Martha’s Catholic Church parish festival. This year it will be held on Saturday, October 3. Along with lots of crafty items for sale, our group has just started working on a special surprise for the silent auction.

The conception of the project began when Lynn brought to Noreen, our resident “Fabric Whisperer,” an intricate paper-pieced quilt pattern called, Advent Nativity, on the Paper Panache website. It is a stunning quilt! But it would be a HUGE project for just one person. I could almost see the wheels turning inside Noreen’s head at the possibilities. It wasn’t long before she was organizing a group of us to make the quilt. Certainly seven pairs of hands could pull this quilt together. With Noreen at the helm there was Sally, Liz, Helaine, Lynn, Clara and myself volunteering for the assignment. No small task, Noreen enlarged the quilt by 190% and put together the quilt sections with fabric pieces into zip lock bags. When finished, the quilt will be 60 inches wide. I don’t recall the length.

Last week, seven of us took home instructions and fabric pieces for a small section of the quilt. I was given the Kneeling King. It had been five years since I’d tackled a paper-pieced project, so I was a little nervous. I have to confess, in the privacy of my sewing room last week, I said a bad word a few times after ripping out the same two small fabric pieces three times.

On Wednesday, everyone brought their paper-pieced assignments in and laid them out. There were lots of confessions of frustration, but you couldn’t tell by wonderful results. I was very impressed! This week will be easier!

Three more weeks of sewing assignments and then the task of sewing the small sections together. This week I was assigned a Shepherd.

Tell me what you think?

Contemporary quilt for Katie


When my oldest daughter mentioned she would love a quilt to hang on a particular wall in their new home, I jumped at the chance. The last quilt I made for her was for our little grandson, Jake. After I learned she wanted something contemporary, I went to Pinterest and created a board for her to peruse. This would be my first time to enter the scary world of contemporary quilts. I was a little worried. Me … piece a quilt with solid colored fabrics? That has never happened before.

Katie choose a quilt pattern on the Pinterest board called Midcentury from Vintage Modern Quilts Pattern Co. It was probably the most modern and geometric on the board. The quilt was designed for Bella Solids by Moda Fabrics. It was easy to go to their website, and for a reasonable fee, download the pattern. My engineering husband helped with downsizing the pattern from 63″ by 74″ to fit their wall.

As the pattern suggested, I used Kona cotton in White and Zen Gray and matched the color of the “window pane” center of the quilt with one of the pillows in Katie and Chad’s living room. I purchased several fat quarters, one solid and the others a pattern that read solid. Could I tempt my daughter to think outside-the-box? Of course Katie picked a true solid fabric for the center.


After the top was finished, I had the most fun collaborating with Kim Norton, the awesome long-arm lady of A Busy Bobbin. Laying the finished quilt top across one of her machines, Kim picked out a thread color and three quilting patterns she thought would complement the quilt top. I took photos of the three and let Katie choose her favorite design … Denise’s spirals.


Katie named her quilt Mid-Century Maze. It was the last quilt I finished in 2014!

Santa Baby quilt

I finally finished my “Santa Baby” quilt!!! I purchased the book and kit during the 2013 Quilt Festival from The Buggy Barn. Their book is entitled “Positively Crazy.” The kit made up 16 Santa blocks. When all was said and done, I choose nine for a smaller wall hanging. The original quilt with all 16 blocks is 84″ X 84″ and just too large for my purposes. I still have three finished blocks that will eventually be turned into a table runner. Three of the blocks turned out mediocre so you can imagine where they are now residing.

I have to say this was the most challenging quilt I ever made. I should have read the directions three times before starting instead of two. The basic premise is stacking 16 layers of fabric (lights and darks), ironing a template on top of the layers, and cutting the layers with a mega-large rotary cutter. It was a little challenging with so many layers and pieces. My biceps are a tad larger after the cutting process! The sewing was fun, but I had trouble with things like getting Santa’s boots to not be pointy, tree trunks a little too thin to my liking, etc.

After the top was finished, I headed over to consult with Kim Norton, owner of A Busy Bobbin. We talked about custom quilting and I totally let her take over with design and thread choices.

I love what Kim did with the quilt!


After sewing on the binding, the identifying patch on the back and the sleeve it was finally ready to hang! What do you think?

World’s largest corn maze


When my son, Ricky, told me about his adventure with his wife, Kate, in the world’s largest corn maze, I thought it would make a great blog post, especially for Halloween. We have corn mazes in Texas, but this one seems to have taken mazes to a whole different level. In honor of Halloween, I’m calling the following … Ricky’s “blob post.”

My wife, Kate, and I have been living out in the modest city of Dixon, California, for the past four years, largely due to its proximity to Travis Air Force Base, where I’m stationed, and where Kate works in Sacramento. The quiet, triangle-shaped city’s main claim-to-fame is the Dixon May Fair, held every year in, you guessed it, the month of May. Boasted as the longest-running fair in all of California, you can find fried anything, midway games, and celebrity acts ranging from Snoop Dog to Larry the Cable Guy–what a variety right? Sadly, even though the May Fair is a 20-minute walk from our door step, Kate and I have never made the trek to the famous fair; it seems we’re always spending time in Napa that time of year!

Aside from the annual May Fair, did you know Dixon hosts the Guinness Book of World Records largest corn maze? Who knew tiny Dixon, also known as “Sheep Town” or “Lamb Town,” had so many quirks? Well it took us three-and-one-half years, but recently we made the five-minute drive over to Cool Patch Pumpkins to conquer the maize maze. After parking, quite appropriately, in a field, we wandered on up to buy our tickets. At $12 per person, we thought the price was steep for a simple corn maze, but we quickly found our jaws dropping in disbelief after looking at the map of the maze!

“Please allow two hours to complete the Corn Maze,” said a posted sign. Probably meant to be a cautionary note, we took it as a challenge and glided to the maze entrance. The labyrinth of corn has you doing loops, following corridors in a large grid, and scratching your head at quadruple forks-in-the-road going in all directions. The map is absolutely necessary to keep you on track, because some of the fake paths are extensive. An alpha-numeric grid helps you match your position on the map with various markers along the maze paths, just in case you’re completely stumped, but watch out for pranksters that have moved the markers around the maze!

As we trekked through the corn rows, our strategies to tackle the maze evolved and refined. We began considering drawing a complete start-to-finish line on our map, then highlighting our position as we went—this proved difficult without writing utensils! Another consideration was using Google Maps on our phone, but, alas, no cell service! About a third of the way through, we started trailing a couple that looked confident in their route, which got us another third of the way through the maze before they took a wrong turn and got us lost as well! Finally, Kate surrendered, gave me the map, and I used my internal compass and sense of direction to calculate our path. Despite these obstacles, we finished in just under one hour! Not the case with everyone where every weekend someone calls 911 hopelessly lost in the corn maze. In case you were wondering, there is no cheese at the end of the maze, but we did take a celebratory photo, high-fived, and headed to nearby Woodland, California for Mexican food and margaritas, which, honestly, should be at the end of every maze.

So while you may not jump to book your next vacation in Dixon, California, remember the world record-setting corn maze at Cool Patch Pumpkins for your next visit out to Northern California. You may just need to walk off some of that wine and cheese from nearby Napa Valley!

A visit to Delft

If you have the chance to travel to Holland, don’t just hang out in Amsterdam! Add a few small towns on our travel agenda. We visited Delft and wished we had a full day to explore. The town is called the “City of Princes,” because of the shared past and present with the Dutch royal family. Because we visited Delft, the Kinderdijk and Haarlem the same day, we did not do the town of Delft justice. We did visit the Nieuwe Kerk, or New Church, built in the 1300’s, but did not make it to the Oude Kerk, or Old Church, a 5-minute walk away or the Delft Factory. Obviously, we spent too much time in the local cheese shop! Or perhaps it was the leisurely beer and crepe lunch?

When things go RIGHT regarding Amsterdam

Lovely Joordan areaToday was a pretty good day! I received in the mail from our credit card company a letter regarding our dispute with the dude who double booked the apartment we were to rent in Amsterdam. See my previous post from September 21. The temporary credits were made permanent! Note to all those reserving accommodations … use a credit card … and keep all correspondence, etc. regarding the rental. I really credit my awesome husband with writing down the entire scenario on his iPad the day of the event while tempers were red hot and details laundry fresh while I was on the phone with the credit card people for hours disputing the charge. There is justice!

Also, today is the second anniversary of my blog! Go ahead … have a piece of toast … or if you would rather … toast to another year of blogging! Statistics for the past year include 35 posts, 554 followers, 4,502 blog views (doubled from last year) with 52 countries viewing from as far away as Iceland and Hong Kong!