A cancer journey – the green folder

Lots of wheelchairs to borrow
Next week is surgery week. Rick’s left kidney comes out on Tuesday! It all sounds a little too simple. Right?

We thought we had finished all our appointments during our pre-op day at MD Anderson. Now we could just coast on a lovely, poufy cloud until the big surgery … but wait! It seems in taking all that blood, possibly a gallon by now, someone had forgotten to “type” Rick’s blood. Really? Is that necessary? But Rick’s dog tags from his Air Force days clearly state the dude is an A+. It seems they don’t take anyone’s word on that. The place is careful … very careful … and I actually appreciated MDA for that. So we spent last Friday … the 13th … our anniversary … at MDA for two last appointments.

The first was the lab! Whenever we visit the MDA lab, I hang out in the waiting room. I figure Rick can perform that task himself as there are not going to be any notes I have to take. After about twenty minutes, my macho Rick walked toward me with the funniest grin on his face. The hot pink flexible tape around each arm where the techs took blood were obviously the culprit. I almost fell on the floor laughing. I took his picture with my phone and immediately sent it to our kids.

“Why did they take blood from both arms?” I asked, picking up everything I dropped on the floor.

Maybe I should have gone into the lab area with him!

“They had to take blood out of each arm, with two different technicians, and then they will compare the tests to make sure I match,” Rick explained.

“And so … did you request the hot pink?” I countered.

“I don’t know whose idea that was, but when the first lady was finished, the second one decided I should match. Only they ran out of hot pink and had to scrounge around to find some,” he grinned.

Our next appointment was with patient education in the Mays Building. That was when we were given the dreaded “green folder.” My eyes widened like bowling balls as the nice lady went over everything for about an hour and then put all the paperwork into the folder. Then she slid the green folder over to me. Basically, it was loaded with checklists, Rick’s preparation for surgery, phone numbers, maps and care plan. OK … this wasn’t going to be simple. But I think I already knew that.

First time in ages we finished at MD Anderson before lunch. Next we headed to mid-town for an awesome anniversary lunch at a place called Holley’s Seafood Restaurant and Oyster Bar on Louisiana. Our first time there. It was delicious! Highly recommend sharing the apple pie bread pudding for dessert!

Yesterday I checked MDA’s patient portal for test results. You get three guesses on what Rick’s blood type came out to be.

A cancer journey – CT scan and infusion results

Infusion drugs!
When last we hung out, Rick had just finished his third immunotherapy infusion. So for about two weeks the superman t-cells have been “cooking” on Rick’s insides. I can tell you we haven’t been twiddling all four of our thumbs this whole time. We ordered a car to be converted for transporting Mimi in her wheelchair, completed construction on a pocket door for Mimi’s room (it needed to be widened for years), and celebrated our grandson Jake’s second birthday. We are in serious love with the tyke!

Rick’s CT scan was this past Sunday … yes I said Sunday … at MD Anderson, the hospital that rarely sleeps. Our awesome daughter, Katie, took her dad for me while I hung out with our Mimi. If you have never had a CT scan, I can tell you do not feel compelled to add it to your bucket list. Not a fun way to spend your day. First you drink a large flavored drink in the waiting room. Rick chose “watery orange” this time. Yum! Then an IV is started. The rest is a mystery to me as daughters and wives have to sit and wait in the waiting room. After lots of hours, Rick came out all done and wasn’t glowing.

On Monday, we had an early morning appointment with the kidney surgeon, Dr. Karam. We pretty much knew from the beginning Rick’s left kidney (the cancer “mothership”) would be coming out. Now we would be getting a surgery date and meeting with the surgeon for the first time. Rick still wasn’t feeling well from the CT scan, so in my haste to pack crackers and nausea medication before backing out of the driveway, I neglected to bring any paper for taking notes. I just know it … someone is going to take away my Girl Scout card for not being prepared.

In the end, I wrote everything down on the back of a Kroger grocery receipt. Here is what he told us. We talked in general terms about the CT scan. No numbers or percentages. The phrase “mixed response” was thrown out. Surgery is Tuesday, May 24. Actual surgery takes about three hours, not including all the stuff happening on the front and back end. Hospital stay is two to three days. Recovery … about two weeks but still not running sprints. Interesting factoid about MD Anderson … they give you a surgery time the day before the surgery. The reasoning is surgeries get cancelled and then some surgeries get added so there are always lots of shuffling of the cards. Seems like it could work for the benefit of patients. I’ll let you know how well it works.

Today we had an appointment with Rick’s oncologist, Dr. Campbell. This is the visit I was most interested in as we’d get information on how the infusion drugs have been working. His first CT scan was in mid-February right before he was diagnosed. This was an important visit!

We learned that in just over two months, the tumor in his chest is reduced by forty percent. OK … double digits! The tumors in the lungs are clear. That means they can’t see them. Can I get an “amen?” The tumor in the liver is reduced by twenty-five percent. We were pleased with the number! The tumors in three bone areas “lit up” as unchanged, but it was explained that the CT scan is not a really good indicator with the bone. We will get further on down the road and perhaps at some point do a bone scan and get a better feel on those areas. The kidney tumor has not changed in size but doesn’t look the same. He was not concerned about this since it was coming out. Rick’s mission for the next four weeks is to get in shape for the surgery. Dr. Campbell suggested a personal trainer. He also mentioned yoga. Yeah … like that is going to happen. I don’t expect the Incredible Hulk in just four weeks but then again … I know an awesome personal trainer!

Bottom line … the tumors are responding to the immunotherapy infusion drugs. Clearly, the power of prayer and immunotherapy is working!